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Thank you, DeAnn! Just bought the ones you recommended!

I also have wounds on my tailbone, acquired during a hospital stay. It is very, very slowly getting better under the supervision of a wound care specialist. They have amazing techniques, you might be very surprised. Is there a wound care speciallist available in your area? I strongly recommend it. The situation is near and dear to my heart and if I can beat it, so can you. BTW I am SMA II age 60.

Love the container! Crafting is good therapy. Are you able to post a link to the small cricut?

Thanks for sharing your experience.

This is so useful and practical, Michael! Thanks for sharing, I would definitely like to see more.

Thank you for this. I definitely want another video. Please.

Thank you.

Your video is really awesome

Hey Micheal thank you for all the offers you have made for our community. Decided that I could undergo scoliosis surgery in 2024. However, I recently learned about the new treatment Apitegromab, which is said to improve a patient’s muscle strength. If this treatment gains approval, should I wait 1 or 2 years to try Apitegromab first? I believe that receiving the treatment before surgery could strengthen my body and potentially reduce the risks associated with the surgery. Once again, I appreciate the contributions you've made to the community, Michael, and I hope to receive your wise advice.

Thanks for the video. Felt like you were talking to me. Are you open to talking offline about this topic? I sent you a message in messenger app. I would really like to hear more about your experience. I have an appointment with a surgeon on Tuesday for a consult. Thx. Michael

Michael, thank you for your informative videos. I enjoy them a lot.

Where did you get microwavable slippers?

Michael, would you be open to having further discussions re: this topic? It is something I have thought about in the past, as a possible option for myself as my condition continues to decline. I feel you would be a great person to discuss pros/cons beyond the video info and more details, if comfortable. Thanks! Anthony

It really takes a long time...

Also ask if Bluetooth can be incorporated into your chair's program settings. Many chairs already have Bluetooth options

If you use hey Google on your phone, set the phone to activate when the phone is shaken. Go to settings, lock screen then activate when raised

Thanks for sharing! Always trying to think ahead with my little girl but even with the best plans, things can always go wrong

Good luck with it mate. Hate getting a new chair.

You need a Wheelchair Pimpology lesson. My UA-cam channel tries to inspire. There's 32 short videos, but it's all about making your chair a better partner. I couldn't even test ride my latest chair until it got a little pimped out. It's 2023. Why do you have to install your own 120 volt AC outlet on a new power chair? That should be standard equipment. Also, where do I plug in my Disco Ball? I love the night life, I've got to boogie...

Hello Michael, I have had the same problems getting a new wheelchair. I am 59 years old with SMA. When driving into my van and driving under a table, my wheelchair has to be a lowrider, that means it has to have quite low seat height. It is very hard to find this kind of wheelchair. I choose the following model: Balder F280 with a low force joystick. Together with three mini twister switches I am able to control every function of the chair, including controlling the computer and my phone by Bluetooth. I'm lucky that I can feed myself when I go close under the table with the low seat height with my arms getting positioned. The seat height of permobile was too high for me. I hope your new wheelchair will give you more freedom and can be controlled easily. All the best!!

Best of luck getting the new chair. I hope that you can get adjustments quickly. Take care!!

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What type of attachment do you have for your service dog. I am new to a chair.

Do you think Apitegromab has the potential to be abused by the fitness community like Ozempic?

Couldn't be more excited! I'll be around 35-36 years old and I have been extremely hopeful

Thank you for sharing! I also have a smart faucet and Jaco. Unfortunately my ramp is very steep. Does your cat ever disappear? I have two Siamese and worry about them getting out with me.

Which door opener do you have? I've been trying to find a way to easily convert my existing one work with Alexa.

thank you for being sincere and such opened person! I also have SMA

Hii! Can you please inform me what the lifter are you using on the video?

Saya juga ingin mendapatkan tindakan medis untuk sma yang saya alami. Please help me..

We are the same age and have similar sounding backgrounds. Thank you for this inspirational video! I used to practice breathing much more than I do now. The stress of life has had an effect on my breathing. The stopwatch made me realize I need to pay more attention.

1 minute 36 seconds first try, halfway there 😎

This isn’t professional financial advice but ABLE accounts are pretty good for saving up for these kinds of things without that money being counted against you on certain disability programs (like SSI).

Do you have the link for the clinical trials? Curious what locations they offer

Thanks so much for the update! I always look forward to these apitegromab updates. Do you know if they are accepting adults for clinical trials? I'm assuming probably not cuz they usually never do, but figured I would ask anyway LOL

I have a question about spinraza. Have you had spinal fusion? If so how does that work? I was told I probably can't because of my fusion by a doctor who I have never seen(was just giving recommendations) . But I also don't think he has the most accurate information because he also told me it was not for adults which I politely corrected him and told him it is

Evrysdi people are called PAL. Patient access liason or something like that

Thank you for sharing

Ugh, what a mess! I hope some things get better soon. Thinking of you...

I agree on all points. I've noticed no difference with water intake cuz i normally always drink alot of water. And even more so when I know I'm to getting my blood done. But the warm definitely helps, in the summertime I will usually go sit out in the sun prior to getting my blood done LOL. I've also noticed less successful blood draws from the PCP's regular nurse. She's terrible LOL. I also tried the phlebotomist upstairs who only does blood all day long, and even though she thought she was hot stuff I also found her to be quite terrible for somebody who does it all day long. I took my chances one day and decided to go get it done from the lab in the hospital which is only right down the street. He got me in one stick. Ever since then I've been only going to him lol. I will even call in advance to ask when he's working before I come over. He laughs when I tell him that LOL. But he's awesome

Why we never see nobody eat with that 35 k$ robotic arm !? Because they cannot. 😮

Thanks for the video DeAnn! I really love that you put these together. The reason the manufacturer does not recommend gluing the pads is that the FDA requires food-safe glue which not everyone has. But I have some good news about the Jaco finger pads. We are now able to replace the part of the finger that has the bad pad. And we now offer a lifetime of free service for your Jaco! So we can ship a finger to you and you can send yours back to us. Just contact me for details.

I feel like this product is so expensive that there should be a warranty for things that break, malfunctions, etc. That was the issue I had with the product when I inquired about it and was told there are no warranties on anything. So as of this moment I have not pursued trying to get one yet. Also an even cheaper hack you can try if you need to down the line, are finger cots. For a lack of a better explanation they are basically as I like to call them, "finger condoms" lol. A lot of people in the restaurant industry wear them when they get a cut so that they don't bleed on people's food. And they are typically like $2 or something for a package of 200 or something like that. And they are rubbery. Just thought I would throw in another suggestion in case your other things end up not working after a while or so. You can also get a package of those long skinny balloons that people use to make balloon animals with LOL

I just recently received my jaco. I appreciate your videos and your problem solving

I believe that I have two copies. What do we do to supplement? Is that the new treatments or do we supplement through diet or both?

I believe i have 3

Thank you for showing this video I just looked through 50+ videos just to see somebody showing the controls and how you select the mode's.

Thank you for updating

Thanks for the update. Keep up the good work. 👊

Hope we can get it soon